Creating a Community of Care 

Our Vision

 

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The staff of the Jason Program feels that critically ill children deserve the best care possible. Much of our efforts are aimed at creating a system that will provide this for all of Maine's children. Below is a list of what we must be. If you have any ideas or comments for us, please give us feedback so we can grow.  
 
bulletPsychosocial Services
bulletContinuous counseling for patients and their families. This service will be provided by the Jason Program team or with local counselors as the situation dictates.
bulletDiscussion groups for bereaved parents and family members.
bulletInternet support, with access to information, resources, and discussion groups.
bulletTeam support, to provide members of treatment teams access to group or individual counseling, helping the caregivers care for themselves.
bulletMedical Services
bulletAccess to complete end-of-life care, where pain and suffering are never tolerated.
bulletSupportive care clinic, where outpatients can receive care for chronic pain, fatigue, and other debilitating symptoms.
bulletIntegrative medicine service, where complementary interventions are blended with standard western medical interventions.  
bulletTeaching
bulletEstablishment and ongoing support of 10 regional centers trained in pediatric palliative care.
bulletEstablish a curriculum and certification exam in pediatric palliative care for nurses nationwide.
bulletInvolve medical, osteopathic, and PA residents in certified courses in palliative care.
bulletParticipation in the American Medical Association EPEC program.
bulletNationwide Activities
bulletCollaboration with other palliative care groups to improve teaching and establish standards of care.
bulletCollaboration with national research groups, generating and publishing new information to help improve medical and social services.
bulletCooperation with regulatory boards for ongoing certification and CPQI.
bulletFinancial Support
bulletCooperation with nationwide groups, such as the Ronald-McDonald Charities
bulletEstablishment of a Jason Program endowment, to provide ongoing support of our efforts.
bulletEstablishment of a children's fund, to provide assistance to needy families.
bulletThe Jason Program Home
bulletDevelopment of a site that will house all our activities, providing a safe haven for critically ill children and their families.


 

 
 

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Last modified: May 04, 2008