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Many people like to use tools in their daily work. We present here links to tools suitable for anyone working in palliative care. Please drop an e-mail to us if you have any favorites you think should be included.

 (Last Updated January 02, 2008)

General

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Pain Knowledge Web Site
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Physician tools include downloadable slides on how to optimize opioid therapy through rotation, titration, and conversion

Information Gathering

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Use RSS to Find new information
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What is RSS?

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Use Yahoo to collect your RSS Information

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Google Reader

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NewsGator

bulletPalliative Care Feeds (via XFruits)
bulletPalliative Care Feeds (Via Google Reader)
bulletPalliative Care Feeds for your Mobile Device
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Use our Palliative Care RSS Collection at Bloglines

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Use our Pediatric Palliative Care Search Tool

Create Your Own Reader
 
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Use one of these readers:

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Web-Based
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Google Reader

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Bloglines

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On your computer
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Info from About.com

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Add Feeds

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See the documentation in your chosen reader. You can add site by site or by downloading then importing this opml file: Pediatric Palliative Care
 

Track Changes to our Site
 
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Track All Your Online Content with Blogarithm
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Blogarithm lets you easily track all the web pages you wish. Any time one or more of your chosen pages changes, you'll get BlogMailtm - a morning email listing all your pages that have new content - including excerpts when available! Try choosing our General News, Jason Program News, and Conferences pages.

Medical Records

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A system of electronic records developed by a children's hospice

Cards

bullet Pain Rating Scales
bullet Initial Pain Assessment Tool
bullet Brief Pain Inventory
bullet Pain Flowsheet

Handheld Devices

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Doctors Gadgets
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A wealth of information on the use of handhelds and other devices in medicine.

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Epocrates puts continuing medical education courses on handhelds

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Epocrates
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"The most widely used clinical references on the handheld"

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Untapped power: A physician's handheld
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Doctors are buying personal digital assistants, although not necessarily for clinical purposes. But new technology and a federal push to e-health could change that.
By Tyler Chin, AMNews staff. Jan. 17, 2005

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Johns Hopkins Opioid Calculator
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The best conversion tools I've seen for the Pocket PC (JP Medical Director, 1/15/2005)

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EPERC Fast Facts on your PDA
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You will need to download the free Infigo reader, then scroll down to Download the Hospice information file, which contains "Information about hospice and other topics, including "Fast Facts" on over 100 issues in end of life care from EPERC".

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Pocket PC users: You must install the reader in the default location. The data files (.pdb) can be placed on a storage card, and the location of those files set in the Settings section of the main program.

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Pocket Guideline: End of Life Care for Hospitalized Adults (Palm OS only)

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Stanford School of Medicine PDA Tools

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PalmSource Medicine
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This web page link is a great resource for Palm OS users written by a Family Medicine Doc with software recommendations. Very complete and useful.

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Journal to Go -  Palm & Pocket PC
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Healthcare professionals can now easily keep current on medical literature and healthcare news. Selected medical journal abstracts and healthcare news articles are delivered to your handheld device or are accessible from your PC. This service is available at no charge.

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PainSTAT - Palm OS Shareware
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PainSTAT provides rapid calculation of suggested dose conversions for opioid pain medications. Intended for prescribing clinician use only.

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Detailed reviews

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Narcotic Conversion Calculator (Palm OS & PocketPC)

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Mobile PDR - Palm & Pocket PC Freeware

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Harriet Lane Manual for Pocket PC
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I find my version of Harriet Lane quite useful, although some reviewers find it incomplete and a bit difficult to navigate. - Gary Allegretta

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Harriet Lane Manual for Palm Devices

Handheld Medical Sites
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Handheldmed

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Medical PocketPC

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PDA Cortex (Healthcare software for the PDA)

Handheld General Information
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Brighthand

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FreewarePPC

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Handango

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DDH Software (robust database products)

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Mobile Planet

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MobiPocket (Books for the PDA)

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AvantGo (information portal)

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PDA Buzz (PDA reviews & news)

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PocketPC Portal

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Skweezer (web viewing on your PDA)

 

Nursing Care

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Medical College of Wisconsin Nursing Tool Kit (new May 2005)

Pain Management

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Chronic Pain Management Resource System
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The Chronic Pain Network (CPN) has made available two resource kits to help health care professionals improve chronic pain outcomes in the clinical setting and deal with the legal and regulatory aspects of pain management.

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Patient Forms
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Patient's Bill of Rights

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Basic Principles of Ethics for the Practice of Pain Medicine. This is a position statement from the American Academy of Pain Medicine, useful for explaining your attitudes to your patients. Please visit their official website for position statements and additional forms.

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Consent for Chronic Opioid Therapy. Consider using this form with all patients who are receiving opioids for the treatment of chronic pain. You may also wish to include this form, Long-term Controlled Substances Therapy for Chronic Pain: A Sample Agreement.

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Pain Assessment
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An Overview of Chronic Pain
Prepared by the staff at the National Pain Education Council

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Initial Pain Assessment Tool

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Pain Rating Scales

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Brief Pain Inventory

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Functionality Assessment Tools
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Katz Index of Independence in Activities of Daily Living

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Functional Status Questionnaire

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FIM Instrument
The FIM ™ is the most widely accepted functional assessment measure in the rehabilitation and inpatient communities. The FIM™ is an 18-item ordinal scale and may be used with all diagnoses. The FIM™ is a proprietary measure and therefore the scale, syllabus, and training materials are not provided here. However, the FIM™ may be ordered by e-mail, on the web, or through the Uniform Data System for Medical Rehabilitation:
270 Northpointe Pkwy, Suite 300
Amherst, NY 14228-1897
Telephone: 716.817.7800

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Prescribing Information
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Equianalgesic Narcotic Dosing (pdf)

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Medications Used in Palliative Care (EPEC Summary) (pdf)

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Quality of Life Assessment

Although quality of life (QOL) instruments vary in terms of the domains that they encompass
(i.e. spiritual, economic, social), all QOL indices are similar in that they measure patient satisfaction related to physical and emotional health.
The RAND 36-Item Health Survey Questionnaire and the Ferrans & Powers Quality of Life Index©, Generic Version - III have undergone rigorous reliability and validity testing and are easy to administer in clinical practice.
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RAND 36-Item Health Survey Questionnaire

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RAND 36-Scoring Instructions

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Ferrin and Powers
 

Pocket Books
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Pediatric Palliative Pain and Symptom Reference
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An invaluable reference for managing pain and other symptoms over a long period of time. Ideal for pediatric units, nurse practitioners with prescriptive authority, home health care agencies and hospices. (102 pages)

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Pocket Guide to Hospice/Palliative Medicine
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The Pocket Guide is a concise, clinically oriented reference that describes palliative medicine interventions for improving a patient’s quality of life, particularly at the end of life. It is specifically targeted to medical residents and practicing physicians not already expert in end-of-life care. With more than 100 tables and assessment tools, the Guide complements other, more in-depth educational materials developed by the Academy. Bulk discounts are available; see order form for details. ©2003

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Symptom Management Algorithms: A Handbook for Palliative Care
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This book, by Linda Wrede-Seaman, M.D., an expert in Hospice and Palliative Care medicine, contains the core information needed for practitioners in the field of hospice medicine, home care and palliative medicine.

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A-Z Pocketbook of Symptom Control

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The Alberta Palliative Care Resource
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Editors are Dr. Jose Pereira and Dr. Eduardo Bruera. It can be obtained by contacting Marie-Josee Paquin at 403-944-4488 or fax 403-944-2128 or email

Protocols & Order Sheets (pdf files)
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Last Days of Life
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An integrated care pathway for the last two days of life: Wales-wide benchmarking in palliative care

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Newborn Pain Management and Assessment
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Southern Maine Medical Pediatric Department Recommendations
This policy is designed for a normal newborn nursery that also provides occasional   level II service.

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Pain Management and Assessment
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Johns Hopkins Policy

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Resuscitation
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San Francisco General Hospital DNR Orders

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University of Washington DNR Policy

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University of Washington DNR Orders

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Communication of Inpatient DNR and Limited Therapy Orders part 1and part 2

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Terminal Weaning & Withdrawal of Support
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St. Thomas Hospital Protocol and Order Sheet

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Johns Hopkins Protocol and Order Sheet

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Queen Elizabeth II Health Sciences Centre DNR Checklist and Orders

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University of California Guidelines for withdrawal of support and pharmacologic management of extubation

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University of Washington Protocol and Orders
 


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Last modified: May 04, 2008