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Computers Improve Quality of life for Children With Serious Illnesses

The Starfish awards were established in 1998 by Volunteer! York County, Kennebunk Savings Bank and the York County Coast Star to recognize people whose volunteering activities have effected good, positive changes in their communities, whether in the lives of many or one. While several people were honored at the annual awards ceremony in April, additional winners have been named every month since, here in the pages of the Star They, too, receive starfish pins and $500 from the Kennebunk Savings Bank Foundation toward the charity or non‑profit organization of their choice.

BY Jennifer Higgins
Staff writer

SANFORD - It's a labor of love, but for Leslie Morissette it's more about love than about the labor.

The Grahamtastic Connection is a non-profit organization that lends computers with Internet access to children with serious illnesses. Morissette started the Grahamtastic Connection after her son, Graham, died of leukemia, when he was only eight years old. She said she remembered that when he was diagnosed with the disease seven years ago, she had attempted 'to look for more information on the Internet which was available at the hospital, but no one had been there to help her. "One minute my son had been healthy and playing and then he was sick," she said. Morissette said that when her son was diagnosed, the community embraced her and her family, sometimes bringing over meals for them.
While her son was sick, he often e-mailed doctors and nurses that he had made friends with and talked in chat rooms with children with the disease. Morissette said she would also e-mail Graham's doctors to discuss different issues.

Graham died five years ago, and about four months after he died, Morissette said she started the Grahamtastic Connection as a way to allow children to communicate. A lot of children with serious illnesses cannot go to the library to use the Internet as their illness restricts their movement. But at the same time, the children need the resource to do homework, e-mail, or even to entertain themselves. "These kids are in isolation," Morissette said. "It is a need that is not being met." For parents, Morissette said, the Internet gives them the ability to research their child's disease further.

And once again the community has embraced the project, Morissette said. Companies have donated items and Sanford Regional Vocational Center refurbishes donated computers and sets them up for the Internet. Renaissance Greeting Cards, where Morissette works as an art director, gives her free shipping so that she can mail the computers out to children. "People understand that your heart is truly in it," she said. She added that the Starfish Award for community service is actually for the entire community. "There is no way I could have done it without the community," she said.

Morissette's program works like a lending library. The computers are signed out and sent or hand delivered to the child for the length of time that the child will need it, which is usually about two to three months. While the computers will have programs to connect to the Internet, Morissette said she will often install office programs so that children can do their homework, games such as flight simulators or some music, depending on what the child is interested in. "It's for education and entertainment," she said. "I have to give the full package and make it as easy as possible for them." She also arranges to have someone show the child how to use the Internet and the computer, whether it is a volunteer or someone at the hospital where they are staying. "I feel so honored to be around these children," she said.

Morissette said she has not yet had a single computer stolen.
She now has 10 laptops that have been shipped all over the United States, including to Arizona, Boston, Florida, and New York. However, for those 10 computers, Morissette said she gets calls weekly, unfortunately meaning that she cannot always provide a computer. "I wish I could say 'yes' to everyone," she said.
While at first she installed a lot of home systems, Morissette said that there is more call for laptops now because they are easier to manage in a hospital setting and are portable. At the moment, Morissette said that the most difficult donation to find is Internet time. Morissette said that it seems as though this donation is becoming more scarce because smaller Internet companies are being bought out by larger companies that decide not to donate. Morissette said she has begun to purchase Internet time for the children.

"The joy that I've given them is what keeps me going," Morissette said.
When asked what she has gained from the organization, Morissette said she has learned that "there is no self-less love. It always comes back to you in some way."
'Morissette said she hopes that she is "making the burden a little lighter" for families going through such difficult time. "It's not a cure, it's not treatment, it's just quality of life," she said.

For more information about the organization, view our Help Us Help page, or contact Leslie Morissette at 324-4153 ext. 251 or at leslie@rencards.com.
Jennifer Higgins can be reached atjhiggins@seacoastonline.com.


 

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Last modified: May 04, 2008