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Publications we have found particularly useful or interesting are included below. If a link exists, it will take you to a review or the article and possibly to the whole text as well. If no link exists, you must obtain the item from your local medical library or Loansome Doc. 

                                        Topics                        Last Updated: May 04, 2008
 

     Pain Treatment Publications  Psychosocial Publications  

   General Review  Advanced Care Planning & Decision-Making  Basic Biology

  Clinical Skills   CME   Issues in Pain Management   Last Hours of Life  

  Non-Pain Symptoms  Nutrition & Cachexia   Neonatal Care

Practice and Policy System-Specific Issues Site Search

 

General Review

 
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EPERC Fast Facts Index

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Pediatric palliative care

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Quarterly Newsletter Designed for Hospice Physicians

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A tribute to hospice

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Hospice care is a human right

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Pediatric Palliative Care
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(NEJM, V.350:1752-1762 April, 2004, Bruce P. Himelstein, M.D., Joanne M. Hilden, M.D., Ann Morstad Boldt, M.S., and David Weissman, M.D.)

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Cases of the Month - from the Medical College of Wisconsin

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Care of the Dying Adolescent: Special Considerations
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From the Division of Pediatric Hematology/Oncology and Blood and Bone Marrow Transplantation, DeVos Children’s Hospital, Grand Rapids, Michigan; and Department of Pediatrics and Human Development, Michigan State University College of Human Medicine, East Lansing, Michigan

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AHPM UNIPAC 8: The Hospice/Palliative Medicine Approach to Caring for Pediatric Patients
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This educational submission is one of a series of 8 monographs prepared by the American Academy of Hospice and Palliative Medicine. Each monograph is designed to be a self-study module and includes objectives, pre and post tests, reading materials, clinical scenarios to allow application of knowledge, references and the opportunity to earn CME credit. UNIPAC 8 addresses the differences between palliative care for adults and children, communication techniques, recognizing normal and complicated grief and initiating interventions, managing psychosocial issues, pain and non pain symptoms, managing opioid related side effects and refractory symptoms and finally, managing a child's death. Reviewers were impressed with the comprehensive nature of the UNIPAC and commented, "the multiple cases studies were varied and covered many ages, complications, etc. The progressive nature of the clinical stories- the ability to "follow" a patient over several years as his condition changes and deteriorates--was very well done and effective".

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To order, contact the AAHPM by phone: (352) 377-8900 or on their web site
 

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Pain and Symptom Control in Terminally Ill Children. Galloway, K.S., M.D., and Yaster, M., M.D., Pediatric Clinics of North America, V. 47, Number 3, June 2000
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This is a wonderful review of the state-of-the-art in pediatric palliative medicine. It contains numerous references as well as practical advice.

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The Palliative Response for Clinicians
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45 topic sections designed to be reviewed or presented in 10 minutes with 5-6 key points and then followed by a section that has expanded outline form and a brief but annotated bibliography. Author: Amos Bailey, M.D.

Basic Biology
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The neurobiology of pain

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Causalgia, pathologic pain, and adrenergic receptors

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Distinct neurochemical features of acute and persistent pain

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The u opiate receptor as a candidate gene for pain

bullet The genetic mediation of individual differences in sensitivity to pain and its inhibition.

Clinical Skills
 

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Exploration of communicative patterns of consultations in palliative cancer care

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Just Say Die, by Scott R. Berry

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Communicating With Realism and Hope: Incurable Cancer Patients' Views on the Disclosure of Prognosis

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Palliative Care by the Surgeon: How to Do It American College of Surgeons (pdf)

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Construction and validation of a quality of life questionnaire for neuromuscular disease (INQoL)
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Conclusions: The Individualized Neuromuscular Quality of Life is a validated muscle disease specific measure of quality of life developed from the experiences of patients with muscle disease and can be used for individuals or large samples.

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Assessment and Evaluation Tools

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Knowledge of rural nurses' aides about end-of-life care

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End-of-life care: questions and answers

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Communication in palliative care: a review of recent literature

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Beyond Advance Directives - Importance of Communication Skills at the End of Life

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Palliative Care in the Final Days of Life

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What Is Empathy, and How Can It Be Promoted during Clinical Clerkships?

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Hospice: a medical student's perspective

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Medical education, hospice, and choices

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Factors influencing pediatric interns' relationships with dying children and their parents

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Shared Uncertainty (pdf)

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Patient-doctor communication Teutsch C., Med Clin North Am. 2003 Sep;87(5):1115-45

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Teaching medical students and doctors how to communicate risk
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Combining the teaching of statistics with communication skills, from the British Medical Journal. Download the article in pdf format here. We believe the importance of this skill is generally underestimated.

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Is this a Bad Day? (pdf)

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Patient Assessment in Palliative Care: How to See the “Big Picture” and What to Do When “There Is No More We Can Do” American College of Surgeons (pdf)

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Key communication skills and how to acquire them
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Good doctors communicate effectively with patients they identify patients' problems more accurately, and patients are more satisfied with the care they receive. But what are the necessary communication skills and how can doctors acquire them?

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Spontaneous talking time at start of consultation in outpatient clinic: cohort study
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Two minutes of talking is enough for most patients

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Telephone notification of death
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EPERC Fast Facts # 76 & 77

CME

 

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Building Academic Palliative Care
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If you are an academic medical center, we can help you secure your status as a national leader in the field of palliative care. Building Academic Palliative Care is a new curriculum developed and taught by three collaborating academic PCLCs - Medical College of Wisconsin (MCW), University of California, San Francisco (UCSF) and Virginia Commonwealth University (VCU).

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Earn up to 48 CME Credits with UNIPAC

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CME: What Oncology Physicians Need to Know about Addiction: Issues for Cancer Pain Management

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Neuroimaging and Pain Management
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from Medscape -- this will require a login or free registration

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The Last Chance for Comfort: An Update on Pain Management at the End of Life
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from Medscape -- this will require a login or free registration

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Focus on Neuropathic Pain Studies (from Medscape -- this will require a login or free registration)

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Hospice Referral and Care: Practical Guidance for Clinicians - CME/CE

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Triptans May Be Ineffective in Migraine With Cutaneous Allodynia

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Topical Anesthetic Relieves Pain of Lumbar Puncture in Neonates

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Pain Is the Fifth Vital Sign: The Role of Primary Care in Pain Management

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Racial Disparities in Pain Management

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Interventional Therapies in Pain Management Supported by a Grant from Arrow International, there are five brief courses here that can earn you free CME credits. 

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Chronic Pain: 2. The Case for Opioids by Daniel Brookhoff, University of Tennessee, Methodist Hospitals of Memphis; $20 for one Category I credit.

 

Last Hours of Life
 
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Hastening Death vs. Palliative Care

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Palliative Terminal Sedation: Is it Ethical?

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Withholding and withdrawing life-sustaining treatment
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full text (pdf)

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Attitudes towards terminal sedation: an empirical survey among experts in the field of medical ethics
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full text (pdf)

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Sedation in palliative care – a critical analysis of 7 years experience
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full text (pdf)

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Terminal sedation and the "imminence condition"

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Attitudes towards terminal sedation: an empirical survey among experts in the field of medical ethics

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Practice of palliative sedation in children with brain tumors and sarcomas at the end of life

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Opioid Use and Survival at the End of Life: A Survey of a Hospice Population

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A Randomized, Double-Blind, Crossover Trial of the Effect of Oxygen on Dyspnea in Patients with Advanced Cancer

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Fast Fact and Concept #158: Respiratory Secretion Management

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Fast Fact and Concept #159: Responding to a Request for Hastening Death

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FAST FACT AND CONCEPT #155: Completing a Death Certificate

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Tube feeding -'The times they are a changin'...

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Artificial nutrition and hydration redux

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Dutch doctors are given guidance on palliative sedation

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Non-Oral Hydration in Palliative Care

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Terminal care: the last weeks of life

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Just put me to sleep...please! Ethical issues in palliative and "terminal" sedation

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Terminal sedation: ethical implications in different situations

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Family experience with palliative sedation therapy for terminally ill cancer patients

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Fast Fact and Concepts #106: Controlled Sedation for Refractory Suffering - Part I

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Continuous Propofol Infusion for the Relief of Treatment-Resistant Discomfort in a Terminally Ill Pediatric Patient with Cancer. Glover, M.L., Pharm.D., Kodish, E., M.D., and Reed, M.D., Pharm.D., Journal of Pediatric Hematology-Oncology 18(4): 377-380, 1996.
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One of a few options that will ease suffering regardless of the clinical situation.

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Please address reprint requests and correspondence to:

Michael D. Reed, M.D.

Division of Pediatric Pharmacology and Critical Care

Rainbow Babies and Children's Hospital

11100 Euclid Avenue

Cleveland, OH 44106-5000

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Propofol Sedation for Terminal Care in a Pediatric Patient. Tobias, J.D., M.D., Clinical Peds, May 1997
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Please address reprint requests and correspondence to:
Joseph D. Tobias, M.D.

Director, Pediatric Critical Care/Anesthesia

The University of Missouri, Department of Child Health

M658 Health Sciences Center

One Hospital Drive

Columbia, Missouri 65212

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Barbiturates in the Care of the Terminally Ill. Truog, Robert D., et. al. New England Journal of Medicine Vol. 327, No. 23, 1678-81
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A landmark article, this piece offers sound medical advice as well as a discussion of the ethical considerations

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Care of the Dying Patient: the Last Hours or Days of Life
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Evidence based guidelines on symptom control, psychological support, and bereavement are available to facilitate a "good death"

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Review a commentary to the article

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An integrated care pathway for the last two days of life: Wales-wide benchmarking in palliative care

Neonatal Issues
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Infants of borderline viability: Ethical and clinical considerations

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When newborn babies have to die...perinatal palliative care?

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Fetal Concerns Program: A Model for Perinatal Palliative Care
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Advances in fetal diagnostics have resulted in families facing a pregnancy complicated by a fetal health concern. Perinatal literature supports that these families benefit from extensive counseling and education presented by a multidisciplinary team. In the program described in this article, perinatal palliative care planning is offered to families who have been told that their fetus has a potentially lethal prognosis. Called the "Fetal Concerns Program," it was developed to address the complex needs of families whose fetus has anomalies. This article reviews perinatal palliative care concepts and describes the Fetal Concerns Program's development as a perinatal palliative care service within a broader program. The special role of the nurse coordinator of the Fetal Concerns Program is highlighted.

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End-of-Life Care for Infants

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Physician Medical Decision-making at the End of Life in Newborns: Insight Into Implementation at 2 Dutch Centers

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Neonatal end-of-life care: a review of the research literature

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A perinatal hospice for an unborn child with a life-limiting condition

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Approaches to end-of-life decision-making in the NICU: insights from Dostoevsky's The Grand Inquisitor

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Modes of death in neonatal intensive care units

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Pregnancy Loss and Infant Death Alliance Position Statement, April 7, 2006

bullet Death in the neonatal intensive care unit: changing patterns of end of life care over two decades
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Implementing a Palliative Care Program in a Newborn Intensive Care Unit (pdf version here)

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End-of-life decisions in delivery room and neonatal intensive care unit

System-Specific Issues
Cardiac

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Late follow-up of patients who underwent palliation for complex congenital heart disease in childhood

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Sudden unexpected death in children with heart disease

Metabolic Disease

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Long-term outcome and clinical spectrum of 73 pediatric patients with mitochondrial diseases

Neurology

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Parent-Reported Quality of Life of Children With Cerebral Palsy in Europe

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Chronic pain in persons with neuromuscular disease

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Pain in hereditary neuromuscular disorders and myasthenia gravis: a national survey of frequency, characteristics, and impact


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Last modified: May 04, 2008