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Supporting a patient
after a near-death experience |
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Psychosocial resources
and depression among chronically ill young adults: Are males more
vulnerable? |
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Impact on parents when a
child has a progressive, life-threatening illness |
 |
Maslow's hierarchy of needs: a framework for achieving human
potential in hospice |
 |
Companionship, control, and compassion: a social work perspective on the
needs of children with cancer and their families at the end of life |
 |
Family perspectives on communication with healthcare
providers during end-of-life cancer care |
 |
Death in the pediatric ICU: caring for children and families at the end of
life |
 |
Improving
Coping Skills Benefits Caregivers of Hospice Cancer Patients |
 |
Doctors' Delicate Balance in Keeping Hope Alive
(you will need to have or create a free registrtion) |
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The
Laughter Effect |
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Can 40 Seconds of Compassion Reduce Patient Anxiety? |
 |
Grief in Children and Developmental
Concepts of Death |
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Dealing With Conflict in Caring for the Seriously Ill |
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Caring for the Child With Cancer at the Close of Life |
 |
A post-hoc
analysis of music therapy services for residents in nursing homes receiving
hospice care |
 |
The impact on families of respite care in a children's hospice program |
 |
Psychosocial Functioning in Pediatric Cancer |
 |
Unobvious wounds: the suffering of hospice patients |
 |
Talking about death with children who have severe malignant
disease
 |
Conclusions: Parents who sense that their child is aware of
his or her imminent death more often later regret not having talked with
their child than do parents who do not sense this awareness in their child;
overall, no parent in this cohort later regretted having talked with his or
her child about death. |
|
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Provider Perceptions of Child Deaths
 |
Elena M.
Andresen, PhD; Grace A. Seecharan, MPH; Suzanne S. Toce, MD |
|
 |
How Pediatricians Counsel Parents When No "Best-Choice" Management
Exists -
Lessons to Be Learned From Hypoplastic Left Heart Syndrome |
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Annie's song: a student's reflection on a memorable patient's
end-of-life care |
 |
'Symbiotic niceness': constructing a therapeutic relationship in
psychosocial palliative care |
 |
More behavioral, social sciences education needed |
 |
Overcoming the false dichotomy of "curative" vs "palliative" care for
late-stage HIV/AIDS: "let me live the way I want to live, until I can't" |
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Supporting family caregivers at the end of life: "they don't know what
they don't know" |
 |
The burden of the 'RA RA' positive: survivors' and hospice patients'
reflections on maintaining a positive attitude to serious illness.
Support Care Cancer, October 25, 2003 |
 |
Pilot of a workbook for children visiting a loved one in a hospice
Int J Palliat Nurs, September 1, 2003; 9(9): 397-403 |
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"You matter to the last moment of your life" |
 |
Depression, Anxiety, and
Asthenia in Advanced Illness American College of Surgeons
(pdf) |
 |
The self-efficacy of family caregivers for helping cancer patients
manage pain at end-of-life |
 |
Families' awareness of and
response to dying Clin J Oncol Nurs. 2000 Jan-Feb;4(1):46
Order here
with NLM Gateway ID #: 10865585
 |
"Conclusions: Developing an
awareness of dying is a gradual process for family caregivers.
Uncertainty and anguish characterize this process... Further research
into how family caregivers use...strategies for managing their
developing awareness of dying is required." |
|
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Managing communication with young people who have a potentially life
threatening chronic illness: qualitative study of patients and parents
 |
Objectives: To examine
young people's and parents' accounts of communication about cancer in
childhood. Conclusions: There are difficulties in managing
communication with young people who have a chronic, life threatening
illness. Health professionals need to be aware of how the social
positioning of young people (relative to adults) and the executive
role of parents can contribute to the marginalisation of young people
and hamper the development of successful relationships between
themselves and young patients. |
|
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Assisted suicide: factors affecting public attitudes |
 |
Pain and hope in patients with cancer: a role for cognition
 |
No
difference in level of hope was found between patients with pain and
those without pain. For those with pain, the cognitive dimension of
pain (meaning ascribed to pain) was significantly correlated with
hope, whereas sensory dimensions (pain intensity and relief) showed no
such correlation. The study results support the role of cognition in
promoting the psychological well-being of patients with cancer. Cancer
Nurs 2003 Feb;26(1):61-7 |
|
 |
A New View of
Comprehensive Cancer Care
 |
Integrating cancer & hospice care from the time of
diagnosis |
|
 |
Truth May Hurt but Deceit Hurts More: Communication in Palliative Care
 |
Fallowfield LJ, Jenkins VA, Beveridge HA, Palliat Med
2002 Jul;16(4):297-303 |
|
 |
The ABCs of Psychological Medicine: The Consultation (pdf)
 |
Linda Gask, Tim Usherwood. BMJ Vol. 324, 29 June
2002 |
|
 |
Assisted Suicide: Practice versus Theory: The Dutch Experience |
 |
Patient attitudes towards euthanasia and assisted suicide |
 |
Dealing
With False Optimism in Terminal Cancer
 |
I believe this is a personal issue we all should
ponder, for the benefit of our patients and ourselves. This
is a review of the article in The British Medical Journal. |
|
 |
The
Complexities of Physician-Assisted Suicide
 |
This well-presented, thorough discussion will
help you manage a request for physician-assisted suicide. |
|
 |
Understanding
of Prognosis Among Parents of Children Who Died of Cancer;
Impact on Treatment Goals and Integration of Palliative Care
 |
Joanne
Wolfe, MD, MPH; Neil Klar, PhD; Holcombe E. Grier, MD; Janet
Duncan, RN, MS; Susanne Salem-Schatz, ScD; Ezekiel J. Emanuel, MD,
PhD; Jane C. Weeks, MD, MSc |
 |
Context: Parents'
understanding of prognosis or decision making about palliative
care for children who die of cancer is largely unknown. However, a
more accurate understanding of prognosis could alter treatment
goals and expectations and lead to more effective care. |
|
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Language and Reality at the End of
Life
 |
A wonderful article, helping all of us understand
each other and our own feeling when dealing with terminal illness
and death. You must find the article in your library. |
 |
Raphael Cohen-Almagor; Journal of Law, Medicine,
& Ethics, 28 (2000): 267-278 © 2000 by the American Society
of Law, Medicine, and Ethics
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