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A reflective model
for paediatric palliative care |
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Reflecting on
practice in children's palliative care |
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The impact of the
palliative care mobile team on symptom assessment and medication
profiles in patients admitted to a comprehensive cancer center |
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Shifting place of
death among children with complex chronic conditions in the United
States, 1989-2003 |
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Patient-Reported
Outcomes in End-of-Life Research in Pediatric Oncology |
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The Bindler-Ball
Healthcare Model: a new paradigm for health promotion |
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"Care with
Compassion"
 |
This is a
CAPC article you can use to prompt a report/discussion with your
hospital leadership about how your hospital measures up to its
competitors with regard to palliative care. |
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Building a case
for neonatal palliative care |
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"I'm not ready
for hospice": strategies for timely and effective hospice
discussions |
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A National Framework and Preferred Practices for
Palliative and Hospice Care Quality |
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Comparing Hospice
and Nonhospice Patient Survival Among Patients Who Die Within a
Three-Year Window |
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The New Israeli
Law "The Dying Patient" and Relief of Suffering Units |
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Developing
collaborative person-centred practice: a pilot project on a
palliative care unit |
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Transforming
doctor-patient relationships to promote patient-centered care:
lessons from palliative care |
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Building a
Meaningful Continuum of Care |
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10 Commandments
of Consultation |
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NY Times on
open-access hospice |
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Palliative Medicine as a subspecialty: What's the
impact? |
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Hopeful Thinking and Level of Comfort Regarding
Providing Pediatric Palliative Care |
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Opioid Use and
Survival at the End of Life: A Survey of a Hospice Population |
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A perinatal
hospice for an unborn child with a life-limiting condition |
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The Birth of a New Medical Specialty
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Got Palliative Care? (Got Milk?) |
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QIOs offer new opp for Pall Care |
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Myth Buster #4 NHPCO Non-Cancer Guidelines |
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Factors associated with multiple transitions in care during the end of
life following enrollment in a comprehensive palliative care program |
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Improving the way we die: a coorientation study assessing
agreement/disagreement in the organization-public relationship of
hospices and physicians |
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End-of-life care in the United States: policy issues and
model programs of integrated care |
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Barriers to quality care for dying patients in rural
communities |
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How Well Trained Are Clergy in Care of the Dying Patient
and Bereavement Support? |
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The Seattle pediatric palliative care project: effects on
family satisfaction and health-related quality of life |
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The American Academy of Hospice and Palliative Medicine
has approved new guidelines for credentialing specialists in hospice and
palliative medicine |
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HPNA Position Statement on Palliative Sedation (pdf) |
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Evaluation and ethical review of a tool to explore patient preferences
for information and involvement in decision making |
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Experience of dying: concerns of dying patients and of carers |
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New Study Shows Need for a Major Overhaul of How United
States Manages Chronic Illness |
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Distance From Home When Death Occurs: A Population-Based Study of
Washington State |
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JAMA on physician assisted suicide
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In many ways, discussion of physician-assisted suicide
masks a far more important problem—the need to reliably and safely
achieve effective relief of pain and suffering near the end of life.
Multiple forces have stood in the way of effective palliative care such
as physician training (stressing intervention over palliation), a rescue
imperative, and the burgeoning development and promotion of life-saving
technologies. Physicians have also feared criminal or civil liability
for hastening a patient's death. Commenting on Gonzales v Oregon,
President George W. Bush expressed disappointment at the erosion of a
"culture of life." However, deep caring and relief of suffering by
physicians at the bedside of dying patients may be a far greater
affirmation of life. Modern medicine must evolve to constructively
support patients in the dying process—a time of incomparable meaning and
importance to the human condition. |
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Thirteen states would require tube feeding of terminal
patients
|
A legislative update by Americans for Better Care of the
Dying shows that thirteen states are proposing legislation that would
require artificial feeding and hydration in terminal patients who have
not expressly rejected such care. Studies have shown that artificial
feeding has little benefit for most terminal patients, but state
legislators are responding to public interest in the subject following
the much-publicized Terri Schiavo case. Pew Center findings indicate
that 72 percent of the public disapproved of congressional action in the
case of Terri Schiavo. |
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Pediatric End-of-Life Care Lacking |
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Viewpoint: Pain Management Often Inadequate
(requires Medscape login) |
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Introducing 'Palcall': an innovative out-of-hours
telephone service led by hospice nurses |
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Telemanagement in hospice-a new frontier |
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Patient satisfaction with hospice day care |
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Children's perspectives of a pediatric hospice program |
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Hospice: comprehensive care at the end of life |
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Defining cancer patients as being in the terminal phase: who receives a
formal diagnosis, and what are the effects? |
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Excerpts: Supreme Court Suicide Ruling |
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Promoting effective social work policy in end-of-life and palliative
care |
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Providing
Hospice and Palliative Care in Rural and Frontier Areas
(pdf)
|
The Center to Advance Palliative Care is pleased to
announce the publication of Providing Hospice and Palliative Care in
Rural and Frontier Areas, a technical assistance toolkit designed to
support providers seeking to enhance access to such services. This
manual summarizes innovative practices gathered from site visits and
questionnaires to address challenges, barriers, and needs. |
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Seeking and using families' views to shape children's hospice services |
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Hospice and a healthy view of dying |
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Preparing for success: Readiness models for rural telehealth |
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The Big Chill — Inserting the DEA into End-of-Life Care
|
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Improving End-of-Life Care - Why Has It Been So Difficult?
(pdf)
|
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Out-of-hours Services For Palliative Care Need To Be
Appropriately Integrated And Resourced |
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The
Global Year Against Pain in Childhood
(2005) |
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Parent and Physician Perspectives on Quality of Care at
the End of Life in Children With Cancer |
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Myth Buster #3 Education changes practice
- David Weissman, MD |
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A new approach for the sickest babies: some hospice programs begin
accepting infants; managing pain in the NICU |
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The benefits of a hospital-based inpatient palliative care consultation
service: preliminary outcome data |
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Providing hospice care in rural areas: challenges and
strategies |
|
Baby Doe Redux? The Department of Health and Human
Services and the Born-Alive Infants Protection Act of 2002: A Cautionary
Note on Normative Neonatal Practice |
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Pediatric Use of Complementary Therapies: Ethical and
Policy Choices |
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The role of home care in palliative care services |
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Medical end-of-life decisions for children in the
Netherlands |
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Telehealth in hospice care, or telehospice: a new
frontier of telehealth service delivery |
|
Level of nursing care vs life quality of patients in the terminal stage
of a disease |
|
Hospice Referral -
Moving from Hospital to Home |
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Are we referring patients to hospice too late? Patients' and families'
opinions |
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Extending palliative care is there a role for preventive medicine? |
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A strategy to increase the palliative care capacity of rural primary
health care providers |
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Hospice care for the terminally ill: an absolute necessity |
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Hospice care for the terminally ill: help or hindrance |
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World-wide advances: Singapore -
KKH launches scheme for children in pain
|
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End-of-life care in a children's hospice program |
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Benchmarking hospice productivity & outcomes to evaluate hospice
staffing |
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Timing of hospice referral and families' perceptions of
services: are earlier hospice referrals better? |
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In search of financial viability: hospital-based v. freestanding home
care |
|
Central nervous system aspergillosis in an immunocompetent patient: cure
in a hospice setting with very high-dose itraconazole
|
Just as palliative care can be given to patients
receiving curative treatment, curative treatment may come to those
receiving only comfort care. |
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Patient speaking: hospice patients discuss their care
|
This researcher asked 38 hospice patients whether
and how hospice provided comfort, allowing the patients to guide
discussion of services. Patients reported that hospice helped them by
providing human contact, allowing open discussion and communication
with other health professionals, providing assistance with tasks they
could no longer do for themselves, and providing physical measures to
alleviate discomfort. |
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Exploratory study on end-of-life issues: barriers to palliative care and
advance directives |
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Social class and access to specialist palliative care services |
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The quality of life of hospice patients: patient and provider
perceptions |
|
The national hospice outcomes project: development and implementation of
a multi-site hospice outcomes study |
|
A survey of evaluation practices for hospice social workers |
|
An empirical chart analysis of the suitability of telemedicine for
hospice visits |
|
The Collaborative Role of the Psychologist and Physician on an
Interdisciplinary Pain Rehabilitation Team |
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MAINE VOICES: Pamela L. Doyle -
The dying should be getting better pain care |
|
JCAHO Sentinel Event Alert:
Patient controlled analgesia by proxy
|
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Hospice Pre-Election Evaluation and Counseling Services
|
The
Medicare Modernization
Act of 2003 included a provision that would allow physicians
employed by a hospice program to provide a one-time only consultation
for pain and symptom management, advance care planning and education
about end of life options to a terminally ill patient prior to his/her
admission to hospice.
CMS has just published the regulations and claims information to
implement this new service "Hospice Pre-Election Evaluation and
Counseling Services" which becomes effective Jan 1, 2005.
View the regulation here (pdf) |
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Developing primary palliative care |
|
Caring for the Child With Cancer at the Close of Life |
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Circumstances Surrounding the Deaths of Hospitalized Children:
Opportunities for Pediatric Palliative Care |
|
Hospice pharmaceutical cost trends |
|
Estimating goodwill: an application of Pine's procedures for hospices |
|
Psychological models that help hospice workers perform mental status
evaluations |
|
Palliative Care: A Supportive Adjunct to Pediatric Phase I Clinical
Trials for Anticancer Agents? |
|
Variability in end of life care (BMJ 2004;328:E296-E297 (15 May) |
|
The
National Consensus Project for Quality Palliative Care
|
The NCP is a groundbreaking initiative that aims to
improve the delivery of palliative care in the United States. This
project is a response to the need for uniformly accepted definitions
of the essential elements and best practices in palliative care. The
project created voluntary consensus Clinical Practice Guidelines for
the establishment and development of clinical palliative care programs
across the United States. View the
recently published guidelines. |
|
|
Ownership status & patterns of care in hospice: results from the
national home & hospice care survey
|
Conclusion: The pattern of care differs in
for-profit and nonprofit hospices. As the industry develops a
substantial for-profit presence, it is critical for clinicians and
other healthcare professionals to be alert to the potential impact of
profit status on the care their patients receive. |
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Are hospices responsible for patients' co-morbidities? |
|
CPT Coding for Hospice in Long-Term Care |
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Caring doesn't end |
|
Utilization of nurse practitioners in long-term care: findings and
implications of a national survey |
|
A Controlled Trial of Outpatient Palliative Medicine Consultation |
|
Pediatric Palliative Care Issues Gaining Momentum |
|
Family Perspectives on End-of-Life Care at the Last Place of Care
JAMA. 2004;291:88-93
|
Conclusions: Many people dying in institutions have
unmet needs for symptom amelioration, physician communication,
emotional support, and being treated with respect. Family members of
decedents who received care at home with hospice services were more
likely to report a favorable dying experience. |
|
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Pain control in hospice home care: management guidelines |
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What is the role of the hospice physician? |
|
The International Association for Hospice and Palliative Care:
international activities and future initiatives |
|
Easing the Pain By Diane E. Meier, M.D.
|
Leading hospitals are finding that palliative care
pleases everyone in the hospital--patients, clinicians and
accountants. |
|
|
A comparison of attitudes of medical students in England and in South
Africa towards patients with life-limiting illness |
|
Can medical education extend palliative care? |
|
Office of Promoting Excellence in End-of-Life Care: Surgeon's Palliative
Care Workgroup report from the field |
|
Pain & Policies Study Group:
Achieving Balance in federal & State Pain Policy (pdf) |
|
Last Acts:
On the Road from Theory to Practice - Progressing Toward Seamless
Palliative Care Near the End of Life (pdf) |
|
Last Acts:
From Theory to Practice - Resource Guide (pdf) |
|
Historical & Cultural View of "The Good Death" (pdf) |
|
CHOICES: promoting early access to end-of-life care through home-based
transition management |
|
The business of palliative medicine--Part 3: The development of a
palliative medicine program in an academic medical center. Cancer
Treatment Research Foundation, Arlington Heights, Illinois, USA |
|
Lighting the way: improving the way children die in America
|
Pediatric
end-of-life care is very different from adult palliative and hospice
care and thus requires specialized knowledge and training to address
the unique needs of these patients. In the wake of a recent Institute
of Medicine (IOM) report on palliative and end-of-life care for
children, there is a momentous opportunity to shed light on the
scarcity of palliative and hospice care services for infants and
children. A new coalition of pediatric hospice and palliative care
leaders has been formed to serve as a unified voice for the leaders in
the field, and the parents and children with which they work. This
article examines the work of the coalition, the unique nature of
pediatric end-of-life care, and the opportunities to effect change
afforded by the release of the IOM report. |
|
Author, Liz Sumner, MD at the "San Diego Hospice
and Palliative Care", welcomes your questions/comments at
mailto:LSumner@SDHospice.org |
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|
The Pallium Project
|
The Pallium
project is a professional community of clinicians, educators, and
academics engaged in building Canada's palliative care capacity
together. Specifically, the current scope of our work is with rural
and remote primary-level health care professionals throughout the
Canadian prairies and in the North West Territories. |
|
|
George Mark Children's House
|
George Mark Children's
House will be the first freestanding children's hospice and respite
care facility in the United States. Scheduled to open in fall of 2003
in San Leandro, California, the House will offer respite support
(round-the-clock), palliative care (comfort and pain management), and
end-of-life care for children with life-threatening and terminal
illnesses. Additional support services will be available to all family
members. Services will be provided regardless of a family's ability to
pay. |
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Palliative and end-of-life care: policy analysis |
|
Where Do Children With Complex Chronic Conditions Die? Patterns in
Washington State, 1980–1998 |
|
Dignity-Conserving Care: A New Model for Palliative Care
|
|
All doctors must be ready to provide palliative care
|
Experts say there is a need
and an expectation for primary care physicians to know about providing
end-of-life treatment.
By Andis Robeznieks, AMNews staff. May 12, 2003 |
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|
Italy reforms it's national policy on pain and opioid use |
