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Advances In Palliative Care

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Last Updated May 06, 2008

New Additions

Self Help (more)

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Agency for Healthcare Research and Quality
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This is an an online resource that allows users to learn, share, and adopt innovations in the delivery of health services

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Talking to My Child About Death (Redbook Magazine)

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Speakers and Educational Workshops (pdf)

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Turning tragedy into tribute by Debra Bradley Ruder

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The power of goodbyes by Debra Bradley Ruder

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Never Alone by Peggy Frezon

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Pain in infants, children, and adolescents: Resources for parents and professionals

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Writing the Obituary - What is it? What do I say?

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Partnership for Parents
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 A Support Network for Parents of Children with Serious Illnesses

 No matter where you are in this journey, you share something with every other parent of a child with a serious illness - we find ourselves pacing the floor in the middle of the night, worrying and wondering. We want to do everything we can to ease our child’s pain and help them live fully. Lack of sleep, money worries, work pressures, the needs of our other children, our spouses and our relatives—everything has an effect on our ability to cope.

Other parents just like you have done it and are doing it right now. This site is created for you by those parents. We understand what you are going through because we have been there ourselves. We have insights and experience to share and knowledge that you won’t readily find anywhere else.

We want this site to be a haven (albeit an electronic one) where you can feel the solace of kindred spirits while finding the information you need to cope with your situation and navigate this difficult journey.

Medical Publications (more)
 
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Progenics and Wyeth Announce FDA has Approved Relistor
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First Drug for Opioid-Induced Constipation to Launch in United States

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Efficacy of a Training Intervention on the Quality of Practitioners' Decision Support for Patients Deciding about Place of Care at the End of-Life: A Randomized Control Trial: Study Protocol

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The Use of Magnets for Pain (from NIH Complimentary Medicine) (download as pdf)
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Preliminary scientific studies of magnets for pain have produced mixed results. Overall, there is no convincing scientific evidence to support claims that magnets can relieve pain of any type. Some studies, including a recent National Institutes of Health (NIH) clinical trial for back pain, suggest the possibility of a small benefit from using magnets for pain. However, the majority of rigorous studies have found no effect on pain.

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Parent-controlled analgesia in children undergoing cleft palate repair

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Hastening Death vs. Palliative Care

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New Palliative Care Information Resource
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This is a collection of new palliative care information from several sites. Just click on "Palliative Care News" and you will see a list of the newest information regarding palliative care of both adults and children. I will continue to add sources. -- Gary Allegretta, MD

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New PowerPoint Presentation: Terminal Sedation - Compassion Amidst Ethical Uncertainties
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Author: Gary Allegretta, MD

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Palliative Terminal Sedation: Is it Ethical?

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Attitudes towards terminal sedation: an empirical survey among experts in the field of medical ethics
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full text (pdf)

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Sedation in palliative care – a critical analysis of 7 years experience
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full text (pdf)

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Withholding and withdrawing life-sustaining treatment
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full text (pdf)

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Easing of suffering in children with cancer at the end of life: is care changing?
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Conclusion: Children dying of cancer are currently receiving care that is more consistent with optimal palliative care and according to parents, are experiencing less suffering. With ongoing growth of the field of hospice and palliative medicine, further advancements are likely.

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View the abstract

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Late follow-up of patients who underwent palliation for complex congenital heart disease in childhood

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Sudden unexpected death in children with heart disease

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Acute effects of opioids on memory functions of healthy men and women

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Pregnancy and Palliative Care
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Perinatal hospices support families with a terminal prenatal diagnosis

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Watch the video

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"Pregnancy care: an apprenticeship for Palliative Care?"

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Pediatric Residents' Clinical and Educational Experiences With End-of-Life Care
 

Social, Spiritual, Ethical, Cultural Publications (more)
 
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Near-death experiences linked to sleep oddities
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Near-Death Experiences and the Afterlife

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Spirituality and Pediatric Palliative Care (pdf)
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A wonderful collection of articles from The Children's Project on Palliative/Hospice Services (ChiPPS)

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Talk About Change
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Film-makers the Kosh and UK children’s palliative care charity ACT have launched a new groundbreaking DVD resource called Talk About Change made by young people with life-limiting conditions. Talk About Change, funded by BBC Children in Need, aims to show the reality of making the transition from childhood to adulthood knowing that you have a life-limiting condition.

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Critically Ill Children in School
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DNR Goes to School; Patients’ fear of morphine limits use

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Exploration of school administrator attitudes regarding do not resuscitate policies in the school setting

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Managing DNR requests in the school setting

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Pediatric do-not-attempt-resuscitation orders and public schools: a national assessment of policies and laws (see links to comments on his page)

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Should a school honor a student's DNR order?

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Back to the future: overcoming reluctance to honor in-school DNAR orders

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Pediatric resuscitation: questioning DNAR legitimacy and offering an alternative decision-making model

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Nurses at the helm: implementing DNAR orders in the public school setting

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Going to school to die: equal treatment for well and ill children

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DNAR in the schools: watch your language!
 

View archives of Advances in Palliative Care here
 

Web Features
 

Welcome to the Jason Program. If you are new, we'd like to remind you of our features:

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What's New:
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There are more photos and a request for your ways of coping on our Inspirations page

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Bereavement, Communication, & Ethics sections on our Psychosocial Publications page

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New ways to gather palliative care information  on our Tools page

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Contact Us: If you wish more information about our services or think we can help you in any way, please feel free to get in touch. We are here to help.

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Search our site here for information or services.

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Learn about our staff, and read some of their publications.

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Review our patient help section, where you may find information or ideas to get you through difficult times.

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As always, we welcome your feedback.


Send mail to the webmaster with questions or comments about this web site.
Last modified: May 04, 2008