Creating a Community of Care 

July 2002

 

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Jason Program Newsletter, July, 2002
 
We exist simply because children have touched our hearts.
We believe they should be listened to and cared for.
 
To the Jason Program Community --
 
We are glad to tell you that we now offer our help to professionals and laypersons wishing advice on a specific issue in pediatric palliative care. By going to our Services page and viewing the "Advice by E-mail" section, you can direct your question to our expert in psychosocial, spiritual, medical, or nursing concerns. We will reply shortly with our suggestions. Please note that we cannot provide specific recommendations, and encourage you to discuss our thoughts with your treatment team or personal care provider.
 
Plans are now moving along nicely for our annual conference, now rescheduled for October 3-5 of this year. Details are available here on our site. Dr. Bruce Himelstein with discuss "Pediatric Hospice and Palliative Care", and Dr. Suzanne Toce will review "Neonatal Pain Control" and "Ethical and Legal Issues in High Risk Newborns".You may also wish consider one of the other conferences we are listing, especially the fine offering from Eastern Maine Medical Center scheduled for September 19th and 20. The agenda is available here, and you can find more details on our calendar page.
 
Similarly, our Advanced Training Course, scheduled for August 21-25 this year is receiving a great deal of interest. We have even received requests from Oregon and China. You can find details on our Advanced Training page.
 
There are some new offerings on the web that you may find of interest. First, we are pleased to introduce you to Ms. Jill Babcock, RN, who joins us as our Volunteer and Events Coordinator. Jill also provides excellent nursing care to several of the Jason Program children. You can read about her here. In the News section you will find that Kate has taken up the challenge to run in the Maine Marathon this year to benefit the children of our program. "I am running the marathon for these kids," she says. "Yesterday I was with a baby who was just struggling for every breath. He does this every day. I just have to do it for 26 miles." Kate's story is available here. Send her a note of encouragement here! In addition, we remind you to consider the services of AirLifeLine. This is a group of dedicated pilots who will provide air transportation to individuals who need specialized medical services far from home. You can lean about them on their website.
 
More information on the care of critically ill children is available on our site. We encourage you to review the new offerings on the Advances section of the news page. The Pain Relief section is also growing, and offers Tools that professionals might find useful in their day-to-day activities. If you have anything you feel we should be offering to others, please drop me a line and we'll consider including it on our site.
 
Finally, we wish to extend our thanks to Southern Maine Medical Center for their interest and kind support.
 
As always, on behalf of the children, we thank you for your interest and caring.

Sincerely, 
The Jason Program Team
P.O. Box 336
Cumberland, Maine 04021
Phone: (207)-829-3537
Fax: (602)-294-5066
E-mail: info@jasonprogram.org
Web: www.jasonprogram.org 
 
 
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Last modified: May 04, 2008